No trach, no tubes in the mouth, no ventilator! Since his extubation at around noon today, Neil has had a little oxygen through his nose. Little by little, the nurse has turned the oxygen down, and soon he will be completely on his own. Thanks to Dr. Bagner’s unconventional call on the breathing tube, looks like we won’t have to deal with a trach. Yay!
Neil has a new favorite game. Some friends brought him a valentine balloon tied to a little monkey. We put it on the end of the bed and Neil kicks it with that amazing right leg of his. This is not as easy as it sounds. It takes a great deal of concentration, a few false starts, and several agonizing minutes before he makes contact. Even though we call it a game, it’s a lot of work for Neil. We’re so proud of him for his persistence.
As I write this post, Scott and I are sitting by Neil’s bedside. We are talking to him and singing him some old family favorites. Neil is reaching his foot over his left leg to touch us and it feels like the sweetest caress. We are literally kissing his feet. I can’t express how much we love this boy.